Idiopathic Pulmonary Fibrosis Job Exposure Study

View the Project on GitHub drcjar/ipfjes

Welcome to IPFJES

A case-control study to investigate whether job exposures are an under-recognized cause of idiopathic pulmonary fibrosis (IPF) using an interview to collect information about previous jobs and a blood test to investigate genetic susceptibility. (clinicaltrials.gov NCT03211507).


The IPFJES Paper is now out, read it here: https://oem.bmj.com/content/80/2/97

Recruitment (final data for active sites as of 24/09/19)

Principal Investigator Organisation Participants Recruited
Sophie Fletcher Southampton University Hospitals NHS Trust 109
Carl Reynolds Imperial College Healthcare NHS Trust 106
Gareth Walters Heart of England NHS Foundation Trust 89
Lisa Spencer Aintree University Hospitals NHS Foundation Trust 84
Helen Parfrey Papworth Hospital NHS Foundation Trust 80
Gauri Saini Nottingham University Hospitals NHS Trust 80
Nazia Chaudhuri University Hospital of South Manchester 74
Alex West Guys’ and St Thomas’ NHS Foundation Trust 64
Huzaifa Adamali North Bristol NHS Trust 64
Paul Beirne Leeds Teaching Hospitals NHS Trust 42
Ian Forrest The Newcastle Upon Tyne Hospitals NHS Foundation Trust 37
Michael Gibbons Royal Devon and Exeter NHS Foundation Trust 32
Justin Pepperell Taunton and Somerset NHS Foundation Trust 31
Nik Hirani Royal Infirmary of Edinburgh 30
Kim Harrison Morriston Hospital 25
Owen Dempsey Aberdeen Royal Infirmary 22
Steve O’Hickey Worcestershire Acute Hospitals NHS Trust 19
David Thickett University Hospitals Birmingham NHS Foundation Trust 16
Suresh Babu Portsmouth Hospitals NHS Trust 12
Andrew Wilson Norfolk and Norwich University Hospitals NHS Foundation Trust 9
George Chalmers Glasgow Royal Infirmary 7

Study documents

Find the most up to date version of the study documents here.

IPFJES interview tool

A bespoke web based interview tool was developed for IPFJES. Full source code is available here.

Site visit photos

We’ve visited several centres now in England, Scotland, and Wales. Obligatory site visit photos are here.

Getting involved

If you would like to hear more about the study we’d love to hear from you. Email carl.reynolds@imperial.ac.uk or follow us on twitter @ipfjes.

Transparency information and privacy notice

You may view IPFJES transparency information here and our privacy notice here.